ADNP association

The ADNP association is a non-profit organization that systematically brings together Czech parents of children with ADNP syndrome. I was motivated to found the organization by my son, who was diagnosed with this rare disease. If you are a similar organization abroad, we would be happy to connect and share our experiences.

The Czech Republic is not a country where the clinical trial for Davunetide is currently taking place. If you are a family affected by ADNP syndrome, do not hesitate to contact us, and we will connect you with the local coordinator.

We are working towards participation in the clinical trial in Poland and/or Germany. If you would like more information about the epidemiological situation in the Czech Republic, feel free to contact us using the contact details below.

Study facilitator 🇨🇿

Ing. Miroslav Holec
info@adnpasociace.cz